A lot has been going on behind the scenes of this blog in the last several months. I have started and stopped this blog post so many times, but I know I need to share.
In mid December of last year, my son was diagnosed with cancer in an extremely rare part of his body. He has Osteosarcoma, a form of bone cancer in the boney area near his sinus, nasal cavity and skull base and he has been undergoing chemotherapy treatment since Christmas Eve. It is very rare to have this kind of cancer in this area in a pediatric patient. We've been on this journey now for somewhere around 4 months with a few months left to go. I am writing this to share with you where we are right now, how things might change on the blog and how I want them to stay somewhat the same.
I feel compelled to share our journey through this very difficult time. So, I am bringing back more personal posts. I will write about cancer again. Some of you know I had cancer when I was 29. I haven't written about it in a long long time. I think I didn't want cancer to define me. I just wanted to be me. Now cancer is an even bigger part of my story and I am not afraid to have it be a significant part of my life. My son is walking this incredibly hard path and I would gladly wave a cancer banner high above my head if it brought more awareness to a pediatric disease that only receives 4% of all federal cancer funding.
With the diagnosis of my son, also came the diagnosis of Li-Fraumeni Syndrome. Li-Fraumeni is a genetic pre-disposition to get cancer at an early age as well as additional primary cancers through out your life. There is a 1 in 20,000 chance of getting Li-Fraumeni. A child without Li-Fraumeni has a 1% chance of getting cancer before the age of 30. A child with Li-Fraumeni has a 50% chance. Luke is confirmed to have it. I most likely have it, given that I also had sarcoma before 30. Even with this new diagnosis, we are fully surrendered to God's plan for Luke's life. God has been so faithful to our family to not only comfort us, but to also bring along side of us some incredible family and friends.
Even with all that is going on, I am still a creative person and creativity and writing are therapeutic for me. So, don't be surprised if you see recipes or artsy, crafts posts and think "How does she have time for that when her child is going through treatment?" The truth is I don't know how I will have time, but I do know I want to share our journey and how God is weaving a tapestry of surrender, trust and humility through the fabric of our days.
If you want to follow along on our daily osteosarcoma cancer journey, you can through Luke's Facebook page Luke The Brave.